THALASSEMIA N ME

Subtitle

 

 

UPCOMING EVENT 

 

World Thalassaemia Day and Blood Donation Drive 2017

 

Date of Event: 09 May 2017 (Tue)

Time: 10.00am - 4.00pm

Venue: KKH Auditorium Foyer, Training Centre, Women's Tower, Level 1

 

 

RECENT PAST EVENT

 


5th Thalassaemia Group Gathering 2016

 

Date of Event: 10 Dec 2016 (Sat)

Time: 10.30am - 2.30pm

Venue: Singapore General Hospital Haematology Centre, Blk 7 Level 2

 

 

RECENT GOOD NEWS ON THALASSEMIA

 

Sickle Cell Anemia Drug Reduces Hospitalizations


* Successful Use of Hydroxyurea in ?-Thalassemia Major  


* Biogen Idec forges a $320M gene editing deal aimed at curing inherited blood disorders

 

* Blood Disorder Patients Respond Strongly to Bluebird Bio Gene Therapy

 

* Gene-editing technique attempted to modify the gene responsible for ?-Thalassemia

 

 

NOTE:

 

* New Contact Me Message/Comment Section on my website. Where you can read the comment & message that I had received through ContactMe Application on my website. If you anything you want to share, ask, say, enquire or help. ContactMe your name will not be listed out on the page so not to worried, even there's name in your message/comment I will take away.


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What Actually is Thalassemia ?


Many Diseases are caused by abnormalities in the blood. These abnormalities are categorised according to b part of the blood affected. There are diseases of the rell blood cells, white blood cells or coagulation diseases. Thalassemia is also known as "Cooleys Anaemia" is an abnormal which is caused by abnormal gene. A person with Thalassemia is unable to produce normal functioning haemoglobin in the blood. Haemoglobin is the oxygen-carrying component of the red blood cells. It consists of two different proteins, an alpha and a beta. If the body doesn't produce enough of either of these two proteins, the red blood cell do not form properly and cannot carry sufficient oxygen. The result is anemia that begins in early childhood and lasts throughout life. Since thalassemia is not a single disorder but a group of related disorders that affect the human body in similar ways, it is important to understand the differences between the various types of thalassemia.

 

In severe form of Thalassemia (known as Thalassemia Major), the person will require a lifetime monthly blood transfusions. This is a painful and traumatic treatment regime that imposes an enormous financial and emotional strain on the patient, and also on his or her family. 

 

 


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  • finencial support

    I have one douther .she was a thalassemia patient. but i have no abilite her proper treatment . please help me .
  • WORLD THALASSEMIA DAY 2011

    HOPE EVERYONE WHO ARE HEALTHY AND ARE ABLE TO DONATE BLOOD TO GIVE A HAND TO HELP THALASSEMIA PATIENTS BY DONATING BLOOD TO SAVE A LIVE.

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