THALASSEMIA N ME

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WHY THALASSEMIA MAJOR PATIENTS WILL DESPIRE FOR A CURE

Posted by Goh Chun Hui on September 25, 2010 at 8:40 AM



Being a healthy living person is what everyone hope to be, especially for Thalassemia Major where patients had to come for regular blood transfusion, having to take/use iron chelaters to get rid of excess iron in the body, come for Full Blood Count almost everytime before blood transfusion, Cross Match before blood transfusion, doctor visit, blood test and screening to be done every year things like that.Supplements & prescibe medication need to be taken everyday. On top of these patients have their career job or studys, which they might not be able to fully attend due to their medical treament/appointment things like that.



There are too many disadvantage of being a thalassemia major patient. But what a bless, recently good news had been release on the success of gene therapy in Thalassemia Major Patient had given us the hope that there will be the cure for Thalassemia Major soon in the future. I am so excited.



So not to make this post too long. In conclusion wishing all Thalassemia Patients will stay positive going what they have to do with their treatment and I am sure more good news will arrived soon and hopefully every Thalassemia Major Patients received their cure and all of us live a happy fulfilling life (:

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10 Comments

Reply Eugenio La Mesa
6:53 AM on October 5, 2010 
Gene therapy is promising; I just would like to inform you that since 1984 Thalassemia major can be cured with Bone Marrow Transplantation.
You can read some FAQs here:
http://www.cchildren.org/node/251
Reply Goh Chun Hui
9:34 AM on October 14, 2010 
Eugenio La Mesa says...
Gene therapy is promising; I just would like to inform you that since 1984 Thalassemia major can be cured with Bone Marrow Transplantation.
You can read some FAQs here:
http://www.cchildren.org/node/251

I do know that, but you need a match of donor for Bone Marrow Transplant and there are risks in it, I had share it in my video, thanks so much for leaving me comment.
Reply Eugenio La Mesa
9:49 AM on October 14, 2010 
a matched donor, in a low risk conditions, has 90% thalassemia free.

There is also a new procedure for mismatch donor (using the mother), read more here, on Blood:
http://bloodjournal.hematologylibrary.org/cgi/content/abstract/bl
ood-2009-05-218982v1
Reply Goh Chun Hui
10:49 AM on October 14, 2010 
Eugenio La Mesa says...
a matched donor, in a low risk conditions, has 90% thalassemia free.

There is also a new procedure for mismatch donor (using the mother), read more here, on Blood:
http://bloodjournal.hematologylibrary.org/cgi/content/abstract/bl
ood-2009-05-218982v1


I heard bone marrow transplant is used to cure patients for children or younger patients, older patients might not be a good candidates to benefit from bone marrow transplant, thanks for informing.
Reply Eugenio La Mesa
10:19 PM on October 14, 2010 
What you have heard it is correct. In general, the sooner you have it, the better, and the highest success rates is for children up to 5-6 years.
Reply Goh Chun Hui
5:33 AM on October 15, 2010 
Eugenio La Mesa says...
What you have heard it is correct. In general, the sooner you have it, the better, and the highest success rates is for children up to 5-6 years.

Thanks so much for these information that's will help alot, feel free to post or share any information and news with everyone on the site. Peace
Reply Derek Trevor Rowswell
12:10 PM on October 23, 2010 
Having been healthy nearly all my life and having donated 234 units of blood (including 50 units of platelets) i recognise the need for Blood donations to relieve the transfusions of patients who need them. Take care!
Reply Goh Chun Hui
6:49 AM on October 24, 2010 
Derek Trevor Rowswell says...
Having been healthy nearly all my life and having donated 234 units of blood (including 50 units of platelets) i recognise the need for Blood donations to relieve the transfusions of patients who need them. Take care!


Great to heard you are donating blood offen, you're doing great kind things, bless you all the best in life.
Reply Jumping the Broom
12:56 PM on April 22, 2011 
I think you have a great page here? today was my first time coming here.. I just happened to find it doing a google search. anyway, good post.. I?ll be bookmarking this page for sure.
Reply Goh Chun Hui
4:17 AM on April 23, 2011 
Jumping the Broom says...
I think you have a great page here? today was my first time coming here.. I just happened to find it doing a google search. anyway, good post.. I?ll be bookmarking this page for sure.

Thanks so much, glad you are bother to read this:D