THALASSEMIA N ME

Subtitle

Blog

« Back to Blog « Older Entry | Newer Entry »

THALASSEMIA MAJOR

Posted by Goh Chun Hui (Jack Goh) on January 19, 2012 at 8:10 AM


Thalassemia major is the most severe form of Thalassemia. A person with Thalassemia major will require a lifetime of monthly blood transfusions. Patients usually have sign & symptoms and get diagnose within few months or early years of life.



Some Thalassemia intermedia patients might become Thalassemia major after needing to require more offen regular blood transfusions.The only cure currently for most Thalassemia major is bone marrow Transplant (BMT), but it require a matched donor and is best to be done during early childhood.



However the life span of Thalassemia major had been extended with proper chelater and treatment for patients.



Lastly, hope more good news will release in the near future on new treatment and cure for Thalassemia major (:

Categories: None

Post a Comment

Oops!

Oops, you forgot something.

Oops!

The words you entered did not match the given text. Please try again.

Already a member? Sign In

286 Comments

Reply wittawat
8:54 AM on January 31, 2012 
thank for information

Thailand thalassemia Patient

http://siamthalassemia.blogspot.com/
Reply Lois
9:25 PM on February 4, 2012 
Thanks so much for blogging! I am 43 yrs. old and have been wanting to communicate with other adults who need monthly transfusions like I do. I feel so alone in dealing with it. I started needing them about 2 yrs. ago. I am taking Exjade instead though. My diagnosis is genaric - anemia from bone marrow not making enough Hemoglobin. I'm rare and out there on my own - not Thassema, not Fanconi, not Diamond Blackfan, not Sickle Cell . . . so on. It is difficult to join a particular group because I'm technically - not it.
Reply Goh Chun Hui (Jack Goh)
6:18 AM on February 5, 2012 
Lois says...
Thanks so much for blogging! I am 43 yrs. old and have been wanting to communicate with other adults who need monthly transfusions like I do. I feel so alone in dealing with it. I started needing them about 2 yrs. ago. I am taking Exjade instead though. My diagnosis is genaric - anemia from bone marrow not making enough Hemoglobin. I'm rare and out there on my own - not Thassema, not Fanconi, not Diamond Blackfan, not Sickle Cell . . . so on. It is difficult to join a particular group because I'm technically - not it.

Hi Lois, nice knowing you and hearing what you had gone through. Bless you and everyone you know. You can share your experience on the forum on my site, to let others know there is a condition like yours do exist. Keep it touch friend:D
Reply vinod kumar
5:27 AM on May 26, 2012 
thanks, i hope this good news come asap.
Reply KennethNandy
3:00 AM on January 26, 2017 
ELM327 bluetooth (OBD II) OR327BT
Click here...
Reply Lbsxalted
9:36 PM on February 3, 2021 
discount pharmacy online ingredients for viagra prescription drugs from canada
Reply CooseHopgense
6:11 AM on February 7, 2021 
https://cbdcreamshs.com/ medterra cbd oil https://cbdcreamshs.com/ - cbd for pain cbd full spectrum
Reply KuikLyday
11:05 PM on February 7, 2021 
viagra professional viagra online us pharmacys viagra. for sale
Reply FvfcDeego
2:45 AM on February 9, 2021 
hong kong viagra viagra online plus 2 free viagra viagra greate britain
Reply Labxalted
8:12 PM on February 10, 2021 
side effects of cialis pills canada cialis generic online cialis empty stomach
Reply Jbbnalted
9:01 PM on February 11, 2021 
what is cialis tablets for cialis commercial theme song cialis 20mg en suisse
Reply NbnhDeego
3:04 AM on February 16, 2021 
female viagra 100mg tablet price in india viagra for women viagra 100 mg
Reply Ahbzalted
12:49 AM on February 17, 2021 
how to take cash advance from citi card military payday advance loans planters bank cash loan philippines
Reply Ilonlgca
10:34 PM on March 4, 2021 
??????? ??????? ????? ???????
???? ???????? ?? ???????? ?????? ????? ?? ???????? ? ???? ???????????? ??????? ?? ???????????? ????? ? ??????. ??? ????? ?????????????:
???????‚?µ?? ?????????‚??
???????‚?µ?????????????? ???‚?°?»??
???‚?°?»?? cor ten ?????????‚??
???‚?°?»?? cor ten ?†?µ???°
???µ?‚?°?»?»???‡?µ?????°?? ???±?€???????° ?„?°???°???°

???µ?‚?°?»?» ?„?°???°??

???? ???? - http://korten.biz.ua

???????? ? ????????? - ???????‚?µ???????° ???‚?°?»??
???µ?‚?°?»?»???‡?µ???????? ?„?°???°??
???¶?°???‹?? ???µ?‚?°?»
Reply BrianMoilt
8:44 PM on April 22, 2021 
?????? ????????
???? ??????????? ?? ????????????? - ???????? ??????????? ?????? ? ??????? ? ?????. ??? ????? ?????????????:
???? ???? - https://aqua-jet.top
???????? ? ????????? - ????????? ??????????? ???????
??????????? ??????????
?????????? ????
Reply Anrewlfw
11:23 AM on May 12, 2021 
?????????????????? ???????? "???? ?????" ??????????? ?????? ?????????? ??????? ????????????? , ? ????? ???????? ???????: ? ??????? ??????????, ???????? ??????????????, ???????????? ??????????. ? ????? ???????? ???????? ????? ?? ????????????? ?????? ??????? ??? ???????? ?????????? ???? ???????????? ????????? ?? ?????? ??????????????? ??? ????. ???? ?????? ??????? ?????????????? ????????????? ? ??????????? ?? ??????? ??????? ? ???????????? ???????.
?????????? ?? ??? ???? - http://startrade.top
????? ??? ????? ?????????????? - ?????????? ??????? ????
????? ?????? ??????
????????????? ???????? ????
Reply Feofankjb
3:55 AM on May 15, 2021 
???? ??????, ? ????? ??????? ????????? ??? ????? ??? ?????? ?????? ???????, ????????? ?????? ??? ?????? ??????? ????? ??
?????? ???????????? ???? ? ??? ??????.
???????? ?? ???:

http://pool.fontan-stroy.net.ua/
http://corten.fontan-stroy.net.ua/
http://bio.fontan-stroy.net.ua/

?????????? ??? ????? ????
????????????????? ??? ?????? ???????
????????????? ???????? ????
???????????? ?????????? ??????????? ??? ????
???????????? ????? ??????
??????? ??????????? ??????
?????????? ??????????? ?????????? ?????
????????????? ???
?????????? ?????
????????????? ?????? ????
deac4b6
???·?????‚?????»?µ?????µ ???µ?±?µ?»?? ???»?? ???°???????? ?????????°?‚?‹ ?????? ?·?°???°?·
?????????‚?? ???‚???»?µ?€?????†?? ???· ?????????????‚???µ?????????? ???°??????
?°???µ???‚???‚???? ?»?°?????€?°?„?‚???????? ?????·?°?????°
???‚???????‚?µ?»?????‚???? ???????????? ?? ?„?????‚?°??????
???‚?µ???»???????°?? ???µ???µ?????????????° ???° ???°??????
Reply Feofantal
11:34 AM on May 15, 2021 
??????? ??????? ?????!, ? ????? ??? ??????? ?????????? ????? ??? ??????? ???????, ??????? ?????? ??? ?????? ?????? ?????? ??
?????????? ???????????? ???? ? ??? ??????.
?????? ???::

http://moss.fontan-stroy.net.ua/
https://www.fontan-stroy.net.ua/
http://smart.fontan-stroy.net.ua/

????????????? ????????
?????????????? ?????? ???????
??????????? ?????? ??????????
??????????? ?????? ??????????
?????????? ?? ????? ?? ?????????????? ?????
???????????? ?????????? ????
???????????? ????? ????
?????? ?????????? ?? ?????
?????? ?????
????????????? ?????? ? ????????
9c2a72e
?????µ ?????????‚?? ?????°???‚ ???‚?µ???»??
?????°???†?µ???°?? ???‚???»?µ?€?????†?°
?????‚???°?¶???‹?µ ???µ???µ?????????????? ?†?µ???‹
?»?°?????€?°?„?‚???‹?? ?????·?°???? ?????»??????
?????·?‹???????????°?? ???°???µ?»?? ???‚???????????‚??
Reply Feofanghg
1:58 PM on May 15, 2021 
????? ?? ????????, ? ??? ???????? ?????????? ??????? ??? ?????? ????, ??????? ??????? ??? ?????? ??????? ????? ??
?????????? ????? ????? ???? ? ??? ?????.
????? ???:

http://green.fontan-stroy.net.ua/
http://aqua.fontan-stroy.net.ua/
http://zakaz.fontan-stroy.net.ua/

??????????? ?????? ????
????? ?????? ?????
????????? ??????????? ????
??????????? ???????????? ???????
???????????? ?????? ??? ?????? ??????? ??? ?????
?????????? ?? ????? ????
????????????? ? ????????????? ????????
?????????? ?? ????? ???????
?????????? ?????? ???????
??????????? ?????? ?????
ad0_b14
???°???‚?µ?????‹?µ ?±???????°???????‹
???µ???‚?????°?»???????µ ???·?µ?»?µ???µ?????µ ?? ?????‚?µ?????µ???µ
???‚???»?µ?€?????†?° ?????? ?·?°???°?·
???‚???»?µ?€?????†?° ???· ???°?‚?????°?»?????????? ???°??????
???·?????‚?????»?µ?????µ ???µ?±?µ?»?? ???»?? ???°???????? ?????? ?·?°???°?·
Reply Feofanzno
2:00 AM on May 16, 2021 
????????, ? ????? ??? ??????? ?????????? ???????? ??????? ??? ???????, ??????? ?????? ??? ?????? ???????? ????? ??
?????? ???????????? ???? ? ??? ??????.
?????? ????:

http://pool.fontan-stroy.net.ua/
http://green.fontan-stroy.net.ua/
http://stroim.fontan-stroy.net.ua/

???????? ??????????? ?????? ??????
?????? ?????
????? ?????? ??? ???
???????????? ?????????? ???????
????????????? ??????? ????
?????????? ?? ?????????????? ????? ????
???????????? ?????????? ???????
????????????? ?????? ? ????????
?????????? ??????????? ? ???????
????????? ?????
d98259c
Tegs:
???????? ????????????????? ???
???????????? ?????????? ????????????????? ????
?????????? ?? ?????????????? ????? ??????
????????????? ???? ??? ???? ? ?????
?????????? ?? ?????


????????????????? ??? ??????
?????? ???????? ??? ?????
??????????? ?????? ?????
?????????? ?? ?????????????? ????? ???????
???????????? ?????? ?????? ??? ?????

Categories