THALASSEMIA N ME

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THALASSEMIA MAJOR

Posted by Goh Chun Hui (Jack Goh) on January 19, 2012 at 8:10 AM


Thalassemia major is the most severe form of Thalassemia. A person with Thalassemia major will require a lifetime of monthly blood transfusions. Patients usually have sign & symptoms and get diagnose within few months or early years of life.



Some Thalassemia intermedia patients might become Thalassemia major after needing to require more offen regular blood transfusions.The only cure currently for most Thalassemia major is bone marrow Transplant (BMT), but it require a matched donor and is best to be done during early childhood.



However the life span of Thalassemia major had been extended with proper chelater and treatment for patients.



Lastly, hope more good news will release in the near future on new treatment and cure for Thalassemia major (:


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286 Comments

Reply wittawat
8:54 AM on January 31, 2012 
thank for information

Thailand thalassemia Patient

http://siamthalassemia.blogspot.com/
Reply Lois
9:25 PM on February 4, 2012 
Thanks so much for blogging! I am 43 yrs. old and have been wanting to communicate with other adults who need monthly transfusions like I do. I feel so alone in dealing with it. I started needing them about 2 yrs. ago. I am taking Exjade instead though. My diagnosis is genaric - anemia from bone marrow not making enough Hemoglobin. I'm rare and out there on my own - not Thassema, not Fanconi, not Diamond Blackfan, not Sickle Cell . . . so on. It is difficult to join a particular group because I'm technically - not it.
Reply Goh Chun Hui (Jack Goh)
6:18 AM on February 5, 2012 
Lois says...
Thanks so much for blogging! I am 43 yrs. old and have been wanting to communicate with other adults who need monthly transfusions like I do. I feel so alone in dealing with it. I started needing them about 2 yrs. ago. I am taking Exjade instead though. My diagnosis is genaric - anemia from bone marrow not making enough Hemoglobin. I'm rare and out there on my own - not Thassema, not Fanconi, not Diamond Blackfan, not Sickle Cell . . . so on. It is difficult to join a particular group because I'm technically - not it.

Hi Lois, nice knowing you and hearing what you had gone through. Bless you and everyone you know. You can share your experience on the forum on my site, to let others know there is a condition like yours do exist. Keep it touch friend:D
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5:27 AM on May 26, 2012 
thanks, i hope this good news come asap.
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