|Posted by Goh Chun Hui (Jack Goh) on May 30, 2011 at 6:35 AM|
Hey everyone I am here to share with you guys on the topic Living with Thalassemia, on a patients prospective or at least of my own point of view.
Living with Thalassemia is always the toughest to me when I first having to accept myself as a patients. Receiving and having treatment for a lifetime which is painful both physically and emotionally. And that imposes a heavy financialand emotional strain on my parents and family.
The list of lifetime treatment of course are having monthly Blood Transfusion and the countless number of chelaters treatment plus these you can think of.
More so if you're around my age group, you have properly started with Desferal Infusion as your chelaters which might be the first thing you want to get rid off after getting cure with Thalassemia as I beileve you have in mind the reason.
When I am in my teenage years, like some of you guys now. I am always shorter in height as compared to my classmate and friends, and that always bother me. At that time, I always try everything that I heard that can make me taller Example: Drinking Milk, Doing Certain Exerise. And later I found out when it's time your body want to grow, it will grow. I always don't have much confident at that time as I can't faced myself as a person.
Until one day something really make me determined to change myself for the better. Which I don't expect that will happened to me this early in life, that my dad had passed away. At that time I am only 18. It takes forever for me to get through the anger and loss.
So how do I get through it ? That's a great question.
Beside thinking that life is too short for all that and now is my time on earth, if I want to do it that badly, I should be able to make it.
Therefore I started looking and trying quite a few jobs. Not going to lie, until now I still cannot get it done by finding one really suit me.
Getting a suitable job is always a major issue/concern amoung all Thalassemia Major Patients.
Why, why is that so ?
Firstly let's take a look on the view of concern on the patients prospective when applying for a job.
Lately I had been building and working on my site on Thalassemia, which name THALASSEMIA N ME leading me in getting the Singhealth Most Inspirational Patient Award 2011 early march this year and so can everyone.
Ok that's it for now on sharing with you guys on living with Thalassemia, my own life journey as a patient. Hope you enjoy it (: